My poor baby woke on a chilly Wednesday morning, confused as to why she was only able to drink juice...no milk, no food, just juice. She cried and cried, and there was nothing I could do to explain her pretty little tears away. I held her and prayed for time to pass a little more quickly...
Over a year ago, we found out that Maya has urinary reflux into her kidney; this problem causes her to be on antibiotics every day to prevent an infection of her urinary tract or kidney. 1 in every 100 children are born with this problem...the good thing is that most children grow out of it and are able to stop antibiotics and never face the question of surgery to save their kidneys as they get older.
The bad thing...some children do not grow out of it and must stay on top of the problem diligently in order to save their kidneys.
Maya's first VCUG was when she was 7 months old.
Now, she is 18 months old, and that gave her a ticket to conscious sedation to ease to discomfort and memory of the procedure.
Daddy held his baby girl before while she received her nasal Versed.
She became pretty loopy within minutes...comfortable enough to watch the bubbles that Miss Lydia and I blew as they inserted a catheter for the procedure. She sucked on a sucker the whole time and nearly chocked from the saliva building in her mouth.
The procedure took about 20 minutes, and I held her tight on the way to the car. She flopped her head back, laughing all the while...still loopy from the versed. Within an hour she started to get cranky...and as I very well see in the PICU with my little patients, the meds became annoying to her. When we got home, she couldn't walk or even sit unassisted in the bath tub. Every time Daddy's arm let her go, her little body slid into the water like she was lathered with oil. She slept with me for 3 hours, it was heaven!
Unfortunately, Maya's reflux is still there...same as it was. We are praying that next year the problem will have corrected itself. For now, we have a good doctor treating her, and we are loving every little piece of our sweet Maya Ruth!
4 comments:
I came across your blog tonight for the first time from another blog that I frequent about baby loss. My youngest was stillborn in January 2010. What I wanted to comment about though was your daughters Reflux. My 4yr old little girl has grade 4 on both sides and had the Ureteral Reimplantation in July. BEST DECISION ever. I don't know how your little one deals with the antibiotics but my girl was still getting UTI's (and 1 horriible kidney infection) even on the antibiotics and it was our choice wether or not to do the surgery and I am so glad we did. I just wanted to mention it in case you hadn't heard about it. She is still on the antibiotic but hasn't had an infection since surgery. Hoepfully we can stop in April which is 1 year from diagnosis. Hugs to you though. The VCUG is such a crappy test to have to do. The only thing they would give my Tessa was Benadryl because they needed her to urinate for the test and watching her being cathered (3 times over 5 days because the hospital staff had no communication with eachother) was the most horrible thing. Hoping things only get better for you.
Meagan J.
Laycee has finally hit a standstill with hers. Basically since she was potty trained the kidney infections stopped. This was her last yearly exam. They told me at this point that we can just wait to see if she gets any more infections or not. The antibiotic was horrible and I was thankful to give it up! Her first VCUG was about 7 months as well. She has seemed to do so well since being potty trained though. Hopefully Maya will heal up on her own
Poor little Maya, that is no fun! We'll be doing Eden's VCUG follow up in June :(
I just came across your blog and am so grateful for your post. My little boy was diagnosed with Kidney Reflux at 2 months and that was when he had his 1st VCUG. We are on daily antibiotics also, his is grade 4 on one side and 5 on the other but I am still hoping for a miracle! I pray your little one outgrows hers!
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